Nurses

 

Welcome to the Nurses Webpage

 

 

Introduction

Over the last few years the role of the Paediatric Rheumatology Clinical Nurse Specialist (PRCNS) has become increasingly central to the speciality of paediatric rheumatology. Historically PRCNS's, within the British Society of Paediatric and Adolescent Rheumatology (BSPAR), have been grouped together with Physiotherapists and Occupational Therapists under the umbrella of Allied Health Professionals (AHP’s). Whilst continuing to work closely with our AHP colleagues it has been increasingly necessary to also distinguish ourselves as a separate entity, in order to develop and promote the role of the PRCNS's where we have the very real potential to influence practice. 

Predominantly PRCNS's are based in Tertiary Centres and share care with colleagues in both secondary and primary care ensuring that children and young people with rheumatological conditions have expert specialist care and can be managed as near to their own homes as possible. Many of the PRCNS's are members of the RCN, Children and Young People’s Rheumatology Community. The CYP rheumatology community is now grouped into the CYP Specialist Care Forum and further information can be found at www.rcn.org

 

 

Aims of Group

  • To provide a forum to support all nurses involved in the care of children and young people with rheumatological conditions.

  • To facilitate networking and the sharing of ideas to encourage evidence based practice.

  • To promote the implementation of best practice through benchmarking and standard setting at a national level.

  • Nurse Competencies BSPAR 2014 ratified.pdf Nurse Competencies BSPAR 2014 ratified.pdf 

 

 

Link Members for BSPAR

  • Catherine (Kit) Tranter is the Chair of the BSPAR nurses group. In this role Kit is also the nurse representative of the BSPAR executive representing the Nurses group.  

Kit works as a PRCNS in Jenny Lind Children's Hospital, Norfolk and Norwich University Hospitals NHS Foundation Trust. 

Kit's contact details are:

paed.rheum@nnuh.nhs.uk

Tel: 01603 287 911 or 01603 286 286 Bleep 1074  

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  •  Helen Lee is an Ordinary Member of the BSPAR executive.  Helen works as a PRCNS at Sheffield Children's Hospital.

Helen's contact details are:

helen.lee@sch.nhs.uk

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  • Eunice Godbold covers the post of BSPAR Secretary.  Eunice works as a PRCNS at Guy's and St Thomas' NHS Trust. 

Eunice's contact details are:

Eunice.Godbold@gstt.nhs.uk

 

 

Meetings

 

Nurse Group Meetings 

  • Annual Nurses Meeting - are open to all nurses, who are members of BSPAR and or the RCN, and working with children and young people with rheumatological conditions.  

    This meeting is rotated throughout the country.                           Dates for your diary: June, 2016 (Southampton), 2017 (Peterborough), 2018 (Birmingham)

 

 

Minutes of nurse group meetings

These meetings have in previous years been generously supported by an educational grant from Wyeth. Next year’s meeting is being sponsored by Abbott.

2011

2012

2013

2014

2015

 

 

 

New Developments

 

 

News Letter

 

 

 

 

DEVELOPMENT OF NATIONAL GUIDELINES

Members of the group have been involved in the development of several guidelines, working parties and patient support groups.

  • BSPAR (2008) Standards of Care available on BSPAR Website
  • Royal College of Nursing (2015) London: RCN.
    Assessing, Managing and Monitoring Biologic Therapies; guidance for rheumatology practitioners. 3rd ed., London: RCN. Available at www.rcn.org.uk
  • Royal College of Nursing (2013)
    Administering subcutaneous Methotrexate for inflammatory arthritis (second edition). London: RCN.
    Available at www.rcn.org.uk
    Lead Paediatric Author, Polly Livermore PRCNS Great Ormond Street.

 

 

USEFUL RESOURCES

Arthritis Research UK

www.arthritisresearchuk.org

Arthritis Care

www.arthritiscare.org.uk

British Health Professionals in Rheumatology

www.rheumatology.org.uk/BHPR/

British Society of Rheumatology (BSR)

wwww.bsr.org.uk

Children's Chronic Arthritis Association

www.ccaa.org.uk

National Rheumatoid Arthritis Society (NRAS)

www.rheumatoid.org.uk

Paediatric Rheumatology International Trials Organisation (PRINTO)

www.printo.it

The above and many other useful resources can be found on the USEFUL LINKS section of the BSPAR website

 

REFERENCES

 
1.   BSPAR (2009) Standards of Care for Juvenile Idiopathic Arthritis. Available on BSPAR website.
 
2.   BSPAR (2007) Position Statement on Professionals Working in Paediatric Rheumatology. Available on
      BSPAR website.
 
3.   Department of Health (2004) The NHS Knowledge and Skills Framework (NHS KSF) and the Development
      and Review Process. London: DH.
 
4.   Department of Health (2004) Building a Safer NHS for Patients. The Chief Pharmaceutical Officers Report,      
      DH, chapters 3,4,5 & 6.
 
5.   Department of Health (2004) NHS Job Evaluation Handbook Second Edition (Agenda for Change). London:
      DH.
 
6.   Hutchinson, L, Jackson, G & Strike H, (2009) Juvenile Idiopathic Arthritis. In Oliver (2009) Oxford
      Handbook of Musculoskeletal Nursing. Oxford: Oxford University Press.
 
7.  Hutchinson, L & Strike H, (2006) Juvenile Idiopathic Arthritis (JIA) in: Glasper, A., McEwing, G, &
     Richardson, J. (Eds.) Oxford Handbook or Children's and Young People's Nursing. Oxford: Oxford
     University Press.
 
8.  Jackson, G., (2006) Paediatric Rheumatology. In: Hill, J. (ed.) Rheumatology Nursing  A Creative
     Approach. 2nd Ed. London: Whiley.
 
9.  National Patient Safety Agency (NPSA) (2004) Patient Safety Alert - Reducing the harm caused by Oral
     Methotrexate, NPSA.
 
10. Nursing and Midwifery Council (2004) Code of Professional Conduct: Standards for Conduct, Performance
      and Ethics. London: NMC (2004 currently under review).
 
11. Royal College of Nursing (2004) Services for children and young people: preparing nurses for future roles.
      London: RCN.
 
12. Royal College of Nursing (2004) Administering subcutaneous methotrexate for inflammatory arthritis.
      London: RCN.
 
13. Royal College of Nursing (2004) Adolescent Transitional Care. London: RCN. 
 
14. Royal College of Nursing (2005) Competencies: Competency framework and guidance for developing
      paediatric epilepsy nurse specialist services. London: RCN.
 
15. Royal College of Nursing (2006) Telephone advice lines for people with long term conditions: guidance for
      nursing practitioners. London: RCN.